El estudio está subvencionado por la CFIDS Association of America y, a diferencia de lo que pasa aquí, no sólo te hacen las pruebas gratis, sino que te pagan por hacertelas (150$ por cada dia de test).
Se trata de comprobar si todos los SFC tienen intolerancia ortostática, aunque no todos presenten síntomas de POTS. Afirman que puede ser que tengamos problemas en los capilares que mostrarian la intolerancia ortostática. Para ello haran unas pruebas en las que mediran el flujo de sangre en la piel mientras hacen pruebas como la de la mesa basculante, e incluso pruebas mentales mientras te hacen los tests, para comprobar su impacto cognitivo.
Desde luego, las cosas parece que se estan moviendo... toi feliz.
El anuncio es éste:
Vascular Dysfunction in Chronic Fatigue Syndrome – CFS with and without POTS
From New York Medical College, Center for Hypotension
We are seeking participants who have chronic fatigue syndrome (CFS) ages 15-39 years of age to participate in a New York Medical College IRB-approved (L-8722 and L9729), funded research protocol. The purpose of these investigations is to determine whether the regulation of blood pressure and blood flow causes symptoms of chronic fatigue syndrome. Some patients with CFS can have symptoms such as dizziness and mental confusion when they are kept upright. This is called “orthostatic intolerance.” When upright, some people with CFS may also develop high heart rates along with these symptoms. When this occurs, it is called the postural tachycardia syndrome (POTS). We have proposed that even though some CFS patients do not have POTS, they may still have problems with small blood vessels that can be detected in skin.
When you come for your testing, we will perform a type of tilt testing and other simple noninvasive tests to determine whether you have POTS or not. If you choose to participate, we will use a technique called intradermal microdialysis in which several tiny tubes are placed in the uppermost layer of the skin, while we simultaneously measure blood flow. In addition, we may perform tests to evaluate your ability to do complete mental tasks and combine this with tilt-table testing. You will be reimbursed $150 per day for this testing, which may take place over several days.
Further details of the research and representative consent forms can be found on our website, http://www.syncope.org" onclick="window.open(this.href);return false;
If interested, please reply to:
Courtney Terilli, Research Coordinator
The Center for Hypotension
Department of Pediatrics
19 Bradhurst Avenue, Suite 1600 South
Hawthorne, New York 10532
[email protected]; Telephone 914-593-8888
Dr. Marvin Medow (left) and Dr. Julian Stewart (right)
Principal Investigators:
Marvin Medow, PhD
Julian Stewart, MD
This study is funded by the CFIDS Association of America. For more information, please visit http://www.cfids.org/cfidslink/2009/050601.pdf" onclick="window.open(this.href);return false; and http://www.cfids.org/cfidslink/2009/070102.asp" onclick="window.open(this.href);return false;.